Tomorrow is the start of September which is Leukodystrophy awareness month and we are joining up with other Vanishing White Matter Families to start the pie in the face challenge to raise money for Vanishing White Matter Research. To kick this off Reed got to throw a pie in my face. We are asking for your help bring awareness to Vanishing White Matter and the very crucial and important research that is being done to help save Reed life by participating in the challenge, posting your video and challenging others (any number of friends you want to challenge) and making just a $10 donation to the research!
Donations can be made here: https://www.crowdrise.com/o/en/team/t...
So, we are nominating some friends to help us get this started:
Zak Knutson
Dustin Behn
Elizabeth Amanieh
Jaima Tonne ( Rayla Wittenburg Tonne)
Brian Pottebaum
And our bestest friends:
Mila and Aira - Ashley Jacoby/ Joe Jacoby
Caroline - Blair Elizabeth Sadler
Savannah - Melissa Graveman ( Kayla Kauffman)
As an added bonus, we will be giving away $100 worth of Team Reed Gear to someone that participated. In order to be entered into this, you have to participate, post your video, challenge others to participate and donate to the research at the following link: https://www.crowdrise.com/o/en/team/t...
Please tag Team Reed and make your video public so that I know to enter you into the drawing. Also, please use these hashtags #teamreed #findacureforvwm #VWMpieinthefacechallenge #piefacechallenge #vanishingwhitematterdisease
Don’t forget to make your video public so that we can all see it!
...need not be nominated to participate please join in!!
