One year ago we learned a new word Leukodystrophy, one year ago we learned our lives would change forever, one year ago we heard the words terminal, no cure or treatment, fatal in childhood.
One year ago we started our fight to save our son, one year ago we lost hope and had to learn how to regain it.
One year later we at thankful for each day we have, one year later we are thankful what seems like slow progression, one year later we are thankful for great therapy, one year later we are thankful for all the love and support we get daily.
One year later we pray for progress in research, one year later we continue to pray for a miracle, one year later we pray to see our boy run again, one year later we pray for another day.
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