Reed’s white matter in his brain is melting away, as this happens Reed has lost the ability to walk, has lost steadiness in his hands, and some speech delays. As the disease progressive Reed could/will lose the ability to use his hands, lose his ability to talk, swallow, see, hear and will eventually cause organ failure and death. A bump to the head, high temperature, cold/flu, stress or fright could speed up the disease and kill Reed. Reed will experience a lot of pain and suffering and die at an early age if the cure is not found in time.
Doctors are working on a cure with promising research taking place to stop the disease in its tracks. The problem, however, is funding and speeding up the progress of this cure comes at a cost of approximately two million dollars. With less than 200 cases worldwide, pharmaceutical companies don’t see it as commercially viable and it is therefore up to the families affected to raise the funds to save our children. And we are in a race against time. The life expectancy on average is only five to ten years from disease onset.
We have added your family to our prayer list. Looking forward to the 5K in May
ReplyDeleteIf you tell more about this disease, it will be help for many people. Is there any cure of this disease? Alzheimer's disease
ReplyDeleteReed’s white matter in his brain is melting away, as this happens Reed has lost the ability to walk, has lost steadiness in his hands, and some speech delays. As the disease progressive Reed could/will lose the ability to use his hands, lose his ability to talk, swallow, see, hear and will eventually cause organ failure and death. A bump to the head, high temperature, cold/flu, stress or fright could speed up the disease and kill Reed. Reed will experience a lot of pain and suffering and die at an early age if the cure is not found in time.
DeleteDoctors are working on a cure with promising research taking place to stop the disease in its tracks. The problem, however, is funding and speeding up the progress of this cure comes at a cost of approximately two million dollars. With less than 200 cases worldwide, pharmaceutical companies don’t see it as commercially viable and it is therefore up to the families affected to raise the funds to save our children. And we are in a race against time. The life expectancy on average is only five to ten years from disease onset.