Thursday, August 27, 2015

September is Leukodystrophy Awareness Month

Please help us spread the word about Leukodystrophy and support Reed!



September is Leukodystrophy Awareness Month, and we thought it would be a neat idea to do something for Reed, I have seen on some websites that they wear blue on a certain day of the week to encourage awareness. Thought it would be neat to do something like that for Reed so we are encouraging YOU to wear blue on every Wednesday of September for Reed.  We choose Wednesday because that is what day his birthday is on this year. If you are interested in a Team Reed shirt you can contact Nicole Siems on facebook, but by no means do you need to get one we just ask that you wear blue on each Wednesday in September.  Also if you are interested in reading more about Vanishing White Matter which is the form of Leukodystrophy that Reed has please visit the VWM Foundation site, you can also make a donation in Reed's name here as well.  There have been some advancements in research and we are encouraged and hopeful that some form of help or treatment will be developed in Reed's time.  Any little bit will help towards developing this. 

Thursday, August 6, 2015

Post It Note

Found this while going through an old note book, perfect reminder and is a needed a daily reminder.