Therapy

Reed continues to go to therapy once a week and then sees in-home therapist 4 times a month, he works very hard in therapy well as hard as a 2 year old can. He definitely shows is personality in therapy when he wants to do something he is all in and if he doesn't want to do something he definitely lets you know.  We have some amazing people working with Reed and are so thankful for them all!

Wear Blue for Reed

I posted earlier in the month that September is Leukodystrophy Awareness month and we took part by wearing blue every Wednesday in September to honor Reed and bring awareness to Vanishing White Matter. On February 24th Reed was diagnosed with Leukodystrophy and then later Vanishing White Matter, knowledge is power with this disease and as there is no cure for the disease our hope and prayer everyday is that there will be a cure within Reed's time. Thank you all for your support for Reed, just like any disease and research money is the key as much as that sucks to say if you fill it in your heart to donate to the cause of vanishing white matter please visit,http://vwmfoundation.org/

Here is a collection of some of the awesome people in our life's supporting Reed and Leukodystrophy month, ‪#‎teamreed‬ ‪#‎whitemattermatters‬

UNI Volleyball

Again I am playing catch up, this was from a Facebook post at the beginning of September:

Reed had a very exciting weekend, Last week I received a very awesome message from Piper Thomas letting me know that the whole UNI volleyball team (players, coaches, managers) all wore blue for Reed last Wednesday and would continue to do so throughout the month of September. To which I told her I would love for the team to meet Reed, we were then invited to come to their serve and pass practice on Friday afternoon. Were we got to meet the team and talk to them a little bit about Reed disease. Later in the evening it was back to watch the girl in action and then again on Saturday afternoon. We are so excited to watch these girls play this season and can't thank them enough for their love and support. Thank you to Piper for her kind heart and thank you to Bobbi for letting us meet the girls and be apart your practice!!

 #teamreed #whitemattermatters#vanishingwhitematter #Staystrong

Team Reed Blue Out Volleyball Game

I am playing catch up, back in September the wonderful Jesup Volleyball team held a Team Reed Blue Out Volleyball Game in Reed's honor.  I coached at Jesup for seven years but have involved in the programs since I started playing in 7th grade.  We were very touched that they wanted to include their number one littlest fan in the team and have a special day for him.  There were shirts and headbands sold, everyone was asked to wear blue and a small presentation was made in between games to Reed and our family where we were given a donation for the Team Reed account and Reed was given a volleyball signed by all the players and coaches and a balloon.  Awareness is the answer, we love our community and all the support they continue to show us.  I truly believe we will see some for a treatment in Reed's time.