Friday, December 25, 2015

Merry CHRISTmas

Merry CHIRSTmas from The Havlik Family, we love you all and can't thank everyone enough for your thoughts, prayers and following along with Reed's story and support to help him fight this disease.


Friday, December 18, 2015

Thursday, December 17, 2015

Thoughts from a 3 year old about sleeping

Sleep...haha, In my opinion sleeping through the night for the first time is the second best day in your baby's life next to their birth that is.  How glorious that day is when you finally get a full nights sleep everyone wins.  In our case Reed didn't sleep through the night until 15 months uggh exhausting but the routine of getting up during the night became second nature and we didn't mind but once the change happened it was glorious and boy he was easy to put to bed, put jammies on, rock and cuddle for a while then he would point to his crib and I would lay him down leave the room and he would put himself to sleep and sleep through the night. 

And then it happened I can remember the date exactly... 

(all being played out in his mind) baby figures out that mom/dad just get to walk out the room and that is it well we will see about this.  Every once and a while they rub my back and that actually feels pretty good so tonight I am going to ask them to rub my back when they lay me down for the night, lets see what happens.  Bedtime rolls around and baby's plot is playing out jammies, rock, point to bed, lay me down, look at mom AND say "back", mom looks at me puzzled so I ask again, "back" oh boy she is catching on I see it in her eyes, "oh how cute baby wants his back rubbed tonight, okay baby i'll rub your back."  Rub, rub, rub 10 minutes later baby relaxes sneaked out of the room, but baby thinks wait a minute mom left. Well tomorrow night it won't be that easy.  Next night rolls around jammies, rock, point, lay, "back", oh okay baby rub rub rub stop, nope not this time mom baby rolls right up into sitting uggh okay rub rub rub rub relax stop, nope up again uggh, okay rub rub rub relax stop leave hand on back wait wait wait baby sleeping sigh, sneak out.    This works for awhile but baby catches on and wants more time with mom so he thinks while I am at it I think I will start having a hard time relaxing at night as to make moms brain go crazy trying to think of ways to help me, enters meds; okay mom you win this battle melatonin to the rescue but wait that stuff wears off at some point.   So mom now that you have caught on lets start getting up in the mild of the night again just because I miss you and need a snuggle.  

(in moms mind) 

Okay baby that is fine we can do this its a phase I am sure, a little struggle to get to sleep and getting up once a night no biggie I'm a light sleeper anyways lets battle.  Oh baby by the way since we are fighting this anyways down goes your crib and hello big boy bed, if we are going to fight this anyways we might as well throw that wrench in to play also.  

(Baby)

Now I got mom where I want her, she now gives me meds to relax me, I got a big boy bed so now she has to lay in bed with me until I fall asleep and then roll out or my bed and crab walk out of my room as to not try to make any noise.  But for fun some nights I like to let mom get out of the room get to the steps of her room and as she is walking up the steps I know there is a creak on the third steps so I wait for her to step and then boom MOM WHERE ARE YOU, hahahaha.  Start all over again.  But now I think I am going to start to get thirsty in the middle of the night maybe just once a night at first but on certain night most the nights before therapy I am going to wake twice maybe three times just to ask for some milk and make mom lay with me for a few minutes all while she has to pee because she is so concerned to get to me and get me back to sleep that she doesn't pee first haha.  I love this game no biggie to me I get to nap in the afternoon and rest up for the next nights games and snuggles with mom again.  I also love winter time because I will whisper to mom that I am cold but then every blanket that she tries to put on me won't be right until the very last one.  Also I think since I am three and now have a full understand of what is going on and still love my binkies I will require that I have at least 4 in arms reach at all times in the night and if I can't find one I will flair my arms until I find them all then proceed to pop each one in my mouth until I find just the right one for that particular minute well until that minute is over and then decided I need to repeat the whole process all over again.  I guess I do feel sorry for mom and I know she craves for her bed so I think tonight I will tell her I want to go lay with dad up in their room but when we get up there and we lay down for a few minutes I will relax for exactly ten minutes just to make mom think this might be working and then BOOM I will tell here I want to go back down to my bed again hahaha.  And then finally when mom is about to cry or break; all will feel just right and I will fall asleep.  

Note from mom...I am beginning to feel like a failure as a parent this week hehehe hence the post, and on a side note when aunt Andrea put him to bed this last weekend and he thought we were gone for the night he slept through the night, also when he stays at grandma and papa's house he sleep perfect as well from what I am told.  Someone is getting played by a three year old and the finger is being pointed at me.