This Video Could Save Reed's Life

6 Month Check Up

Yesterday we met with our Neurologist for our 6 month check up. All things seem to be going okay. He felt the tightness in Reed's hips and legs needed some attention so we are going to try some Botox injections in his legs to see if that will loosen things up. We decided to go this route rather then using drugs as we would like to keep drugs with side effects out of Reed's body as much as possible. We hope this will allow Reed to relax a little bit more in his lower body.

Other then that things for Reed seem to be going okay, he is losing some trunk strength and starting to show signs of struggle from going from belly to pushing himself up to sitting.

These things are things we knew we would face and are not surprised by them. Reed also doesn't seem affected by them he still is his crazy happy self. We still fight this fight and still have faith in a treatment or cure for Reed.

Happy 4th Birthday Reed!!

HAPPY 4th BIRTHDAY sweet Reed!!!

How is it that you are four already, how is it that four years have passed already. Reed you are the light of our life, your beauty inside and out is one of a kind. You will probably never understand how you have affect peoples lives. Reed you are an amazing boy, so smart, loving and happy, you are so determined and love so deeply, your smile is going to take you far in this world. You love your mama and daddy deeply and are your mama's "super hero" you keep her head on straight for her by having the best memory. Reed God has big plans for you, plans to share your story, plans to share about God's love and mercy, we truly believe that God's plan for you is bigger then we know right now. HAPPY HAPPY 4th BIRTHDAY to our "big boy", we hope your day is as amazing as you are!!! You are our light and our world Reed.

"For I know the plans I have for you declares the LORD, plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11"