Updates From my Facebook Page

Here are few updates on how are weeks have been going that I posted to my facebook page.

2/28/15
Reed had a good day yesterday cousin Lily-Belle and aunt Colleen and a few other friends came out and played for a little bit. Which was really good for him. We had a doctors appt and saw aunt Becca the appt went good it was more to just talk to our local doctor and will be nice to have a middle person between us and Iowa City. Reed personality seemed more himself then it has in the last week. Mom and dad continue on a roller-coaster but we keep telling ourselves one day at a time. Again thank you for all your prayers they are much need, and thank you for all the loving support.

3/7/15 Just a quick Reed update on how his week went. We had an up and down week well maybe just mom did. Week started out with more blood drawn that is being sent up to mayo. He also started more extensive therapy at EDI, which went good he was pretty clingy but I think as he gets used to it, it will be really good for him. This was hard for me though just watching and thinking about what this means. We will go to therapy once a week. We had one day this week where the evening didn't go so good Reed acted like he was in some pain, red in the face crying and not able to get comfortable but he eventually calmed down and played like normal. There have been some good things Reed seems to be learning new words everyday and we hope that this will continue and he will maintain this, and yesterday at daycare I was told he did a lot of standing which I haven't seen him do much of in days, this was really encouraging for me to hear. I am becoming a logistic specialist getting all the appts scheduled, I am trying hard not to overload him because I think all the appts lately have stressed him out. I had couple bad nights where I let my thoughts get the best of me, but we continue to take one day at a time. We continue to pray hard and often and ask for God's guidance and comfort during this time. We can not say thank you enough to you all for everything you have done or are doing for our family, we love you all and you are just as much in your thoughts and prayers as we are in yours.