Yesterday we met with our Neurologist for our 6 month check up. All things seem to be going okay. He felt the tightness in Reed's hips and legs needed some attention so we are going to try some Botox injections in his legs to see if that will loosen things up. We decided to go this route rather then using drugs as we would like to keep drugs with side effects out of Reed's body as much as possible. We hope this will allow Reed to relax a little bit more in his lower body.
Other then that things for Reed seem to be going okay, he is losing some trunk strength and starting to show signs of struggle from going from belly to pushing himself up to sitting.
These things are things we knew we would face and are not surprised by them. Reed also doesn't seem affected by them he still is his crazy happy self. We still fight this fight and still have faith in a treatment or cure for Reed.
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